Last month marked the year anniversary of my last visit to the autonomic center at Stanford.
No I didn't have this date circled on the calendar, I just happened to make the mistake of trying to drive somewhere on the high schools graduation day this year, which reminded me of that same day last year when I was trying my hardest to hold in the desire to pass out and or puke while stuck in miserable traffic.
That tilt table test was a doozy, you guys.
But it got me thinking about how far I've come in this last year. Not that I don't still feel like a ticking time bomb waiting to go off, but things are a lot brighter then they were last summer.
So I thought I'd spread a little of my
P.O.T.S knowledge out into the universe because there is nothing I like doing better then telling people what to do.
I'm really pretty good at giving advice about life.
You wouldn't be able to tell this about me because my own life is a giant pile of doodoo, but I do follow my own advice most of the time so maybe I shouldn't start up a new career as a life coach.
Just call me CarinaMD, which is basically what my real life social media handles are, but thats because that's all I could get related to my actual name not because I think I'm a doctor.
Now we have that issue settled down.
(shameless plug: follow me @carinamdee on all the things)
I could go on for days about doctors, and medicine and proper diagnosis. But this is more about after diagnosis.
You've been given this life sentence, what now?
(also see my
letter to a newly diagnosed personage, and
this post from a few months ago)
If you don't have
Postural Orthostatic Tachycardia Syndrome and don't care to learn about treatment options or you don't have an hour to read this post, don't click on.
It's very long and very medical.